We provide resources, education and information to people affected by Alpha-1. Through our medical networks and collaborations, we can offer support to newly diagnosed and for them seeking basic information and help such as requests for literature etc.
Contact information: firstname.lastname@example.org
A conversation about life with Alpha-1 Antitrypsin Deficiency
A1R TIME is initiated by CSL Behring to spread awareness about the serious genetic condition Alpha-1 Antitrypsin Deficiency. The condition is mainly affecting the lungs, often giving rise to chronic obstructive pulmonary disease, with a major impact on human life. Under the name A1R TIME we will publish podcasts and videocasts were you´ll meet patients and experts sharing experiences and insights about the disease, about treatment options and current research. Our goal is to create a community for all affected by Alpha-1.
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Suffer from Alpha-1 or are you asymptomatic?
Episode 1 of 3 with Dr Møller. What is the difference between suffering from Alpha-1 Antitrypsin Deficiency and being an asymptomatic carrier of the disease? Doctor Helene Møller Frost explains.
The long road to diagnosis
Gunhil knew that something was not right. She was 18 years old and short of breath. When it was at its worst, her lung capacity was down to 20 percent.
The complete fascination of a protein
Eeva Piitulainen has been fascinated by Alpha-1 Antitrypsin Deficiency and found it remarkable that no pulmonologist was conducting research on the subject.